Mercies In Disguise
Gina Kolata 2017
Interesting reading, a people story more than a science story
pIX "The two most important days in your life are the day you are born and the day you find out why."
attributed to Mark Twain but not likely
Story of the Baxley family in South Carolina with genetic GSS Gerstmann-Sträussler-Scheinker syndrome
Hartsville, South Carolina, Bill Baxley Jr. patriarch, Baptist
p99 Faye Baxley, scientist at NASA Huntsville (no cites)
IVF with PGD, in vitro fertilization with preimplantation genetic diagnosis, cost $22K